Sally's
Story
I have been in remission now for over 1 year
(YES!!!). That is complete remission with no
symtpoms and no meds. I was diagnosed in 2004 and
rode the roller coaster of varying doses of
prednisone coupled with Cellcept at first and
then Imuran. After many ups and downs, 4 years of
meds, and a very slow taper of prednisone, I was
able to go off of all meds and have been doing
great for the past year. My treatment was with
Dr. Anhalt, who I am extremely grateful to for
his knowledge and compassion.
I have never done IVIG or Rituxan although these
therapies were discussed as options had I not
finally started doing well on the meds I was on.
I do have to say, however, that I have never
taken zinc or niacinamide, so I cannot owe my
remission to that.
I think that it is wonderful that we have
alternative therapies such as Rituxan and IVIG.
My understanding is that most of the time, these
treatments are used for those patients who do not
respond well to traditional therapies. I know
there are people in {the discussion)} group who
have had tough battles and have not responded
well to prednisone and immunosuppressive
therapies. I think that is when these other
treatments come into play.
I think using supplements can be very
wonderful and if it works for some, then that is
great. I don't think, however, it's always enough
for everyone. And, I think with this disease, the
treatment and journey is different for us all.